How Can a Morgellons Message Board Help Me?

For individuals who have Morgellons Disease, the world can seem like a lonely place.  Family and friends, (not understanding what is going on), may be scared of the disease while doctors may dismiss it, despite the physical symptoms.  Who else can Morgellons Disease sufferers turn to?  Psychiatrists and psychologists may provide some form of emotional support, but since they are still doctors trained in treating the mentally ill, they may make it seem that psychotherapy remedies are what will get the problem to go away. The other option could be a Morgellons Disease support group, but if there is not one in the area where a Morgellons Disease sufferer lives in, they are out of luck.  The next best solution would be going online to a Morgellons message board. 

Morgellons message boards offer a wealth of information about Morgellons disease.  Members not only tell their personal stories, but they also share treatment tips.  In addition, most who post on Morgellons message boards are those who actually have the disease or those who empathize with the condition.  Trolls, online posters who intentionally post threads meant to cause unwanted controversy, (often times promoting agendas that go against a board’s original intention), are limited on most Morgellons message boards through a registration process.

Where can one find a Morgellons message board?  One can search for Morgellons message boards through Google or through what are known as ‘groups’.  Groups are basically message boards that are created by individuals, rather than webmasters.  Examples of groups include Yahoo Groups or Groups@Aol.  To create a group, one basically answers a series of questions and/or follows a template; no technical expertise is required.  In fact, groups are so easy to make that it is recommended that more Morgellons Disease sufferers create them.

Another online alternative are general message boards that have a thread or two on Morgellons Disease.  The downside to this is that since the message boards are not specially designed to discuss Morgellons Disease, members may not be sufferers themselves.  There are also those who go as far as to say rather unkind things about Morgellons sufferers.  For example, in one message board post a member said that Morgellons Disease was simply a way for drug addicts to legitimize their mental illness.  Another board poster said Morgellons Disease was ‘made-up’ and its sufferers do not really want to be healthy.  Hundreds of comments like these exist on general message boards.  Whether or not this can be upsetting to a Morgellons Disease sufferer depends on the individual.  Some Morgellons Disease sufferers see that when ignorant comments are made they are given an opportunity to share their stories, showing that what they have is real and not the result of an unbalanced mind.

In conclusion, Morgellons message boards can be an excellent way of being able to talk about Morgellons Disease, especially if a Morgellons Disease support group is not available.  For Morgellons Disease sufferers who are on a personal campaign to educate posting about Morgellons Disease on message boards not dedicated to that as a topic may also provide a form of solace.  The main key factor is that a Morgellons Disease sufferer does not remain silent about their condition.

 

 

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